. . . is the inability to find physicians who are knowledgeable about LBD,” or Lewy body disease. It is the second most common dementia, yet it is misdiagnosed 80 percent of the time (J’s was), leading to suboptimal treatment at best and disaster at worst, since people with Lewy react very badly to antipsychotic medications that are often given to agitated Alzheimer’s patients.
Finally, finally, a major medical center, NYU Langone, is doing something about it. (And in New York! If only.) In J’s honor, take a moment to learn a bit about the disease that killed him. It may help you help someone in the future, or belatedly recognize what it was that really ailed someone you loved. And pass it on.