– you could almost call it an existential challenge — is the silent, empty days when friends are sealed off in their lives somewhere, busy and preoccupied, without the magnanimous excess it takes to attend to us; when none of the bustle and substitute social life of hospice is scheduled (the two aides who bathe J would normally come today, but rescheduled for tomorrow); when we two might as well be the only people on a deserted planet. There is no perspective, no matter how my mind tells me “This too shall pass,” “Tomorrow will be different.” (It will!) No, it is an eternal present, and it feels like the bedrock, the baseline, of our condition laid bare. Everything else is a temporary reprieve, a weekend pass from prison, a kind lie.
J has been a little bit sick — aspiration bronchitis, I guess you’d call it — well short of pneumonia, but labored, rapid breathing and a low fever. The hospice doctor agreed to an antibiotic, and he’s better. But such episodes (pretty rare for now) remind me how little time we have. Every day he’s weak and out of it like that, he loses double the ground from being unable to do the things that keep him going: sitting up in his chair, getting out of the apartment, doing a little bit of exercise, or going to the pool, for which he has to be strong enough to pull himself up by a grab bar while I hold him up by his waistband and two lifeguards quick swap the water wheelchair under him. It will be a week or two before I’m confident that he’s regained enough strength even to try. Too bad, because it’s the only thing worth taking him out for in this heat.
Hospice also convinced us to accept oxygen. I’ve been nervous about having it in the house after the fire. We do now have the whole nine yards, cylinders for portability and in case of a power outage, which is overkill since J can and mostly does live without it. But there’s also a machine that takes it right out of the air. When J’s breathing is compromised, he clearly doesn’t get quite enough oxygen to a brain that’s already in other kinds of deficit. So I’ve been giving him both a nebulizer mask with bronchodilating meds and a nasal cannula with oxygen, as much as he’ll tolerate gadgets on his face, which isn’t much. The oxygen gives him more mental energy, and that turns out not to be a particularly good thing. It doesn’t dispel his confusions and delusions, just kind of supercharges them. And today, it seemed to make him more aware of his boredom and purposelessness as I worked and swilled away at the engrossing social tit of the Internet while he sat there, propped up on the side of the bed. He is blessed to be rarely depressed, but today I was concerned enough to ask him if he was, and he admitted it.
What do I do then? Well, I go into overdrive. I get him washed, dressed, and up, acting as busy and jolly and silly as a barrel of monkeys while crying inside, for him (Ridi, Pagliacci!). I shut the computer and resolutely put it away even though this blog post is already forming in my head. I work out with him, doing my karate slowly while he, sitting in his chair, does the vestiges of his (often his left foot moves when he tries to send a message to his right one, or he can’t alternate left and right hands but uses both at once). I make him an old faithful favorite thing to eat (three fried eggs) and an attractive new thing to eat (avocado and orange salad, slices alternating like flower petals). I put jazz on the CD player. He was probably depressed in part because he was hungry, having declined breakfast. He is easily led back to enjoyment of the basic pleasures of life. He reminds me of his mother, whose mild martyr complex could always, always be dispelled by a good joke. Neither of them could ever resist an invitation to laugh.
Now he’s watching Silence of the Lambs, which I assure you will make him him very happy. I’m about to go finish my workout, which, along with coffee, floats my boat. And the day is over. Tomorrow will be different.